Uday, inspiration behind Uday Foundation
Sometimes when you are dealing with a serious problem you watch the world wandering happily by and want to either (a) cry (b) drown your sorrows (c) say some rude words or (d) all of the above, because it seems you are the only one in this sorry situation. Well, you are not. Although there will be ups and downs you will come out the other side.
In 2006 Uday was born as a sibling to a healthy sister Lavanya . Tulika and Rahul Verma planned second baby to give a company to their daughter. It was a full term pregnancy with out any complication.
The minute Udaywas born, the doctors found multiple congenital defects that shattered the dreams of the parents. They were devastated and
could not understand why they were being punished in this way. They had no choice but to accept the inevitable reality and decided to give him the best possible medical care.
Perhaps this is a penalty he has to pay for being born in a third world country. Yes, when Uday was only one hour old he had a price tag on his life. If parents paid the price, they can have him, if not he has to go back to where he came from.
Tulika and Rahul went through phases of self-pity, denial, mutual accusations and anger towards the society, which was indifferent to their problems.
After 9 correction surgeries, 11 hospital stays, Uday still undergoes daily enema and occasionally suffers from severe diarrhea and fecal incontinence.
As a suffering parents of small suffering baby , it was scary to think about hundred of parents who can not afford treatment or lack of awareness about the subject. Tulika and Rahul also realised that most professionals in education, press, medicine and social work fields were largely unaware of congenital defects.
Tulika and Rahul decided to create Uday Foundation to provide support services to the Indian families of children afflicted with congenital defects, critical disorders, syndromes, and diseases that affect their health condition, education & growth. Advocacy on Indian public health policy, awareness and implementation of various health related projects for common citizen.
Also to create awareness of congenital defects to the media, to governments, to all professionals who needed to know about the disabilities of those they were dealing with on a daily basis, and ultimately, the general public.
Uday, inspiration behind Uday Foundation
About Uday Foundation
The Uday Foundation has grown from what was essentially a handful of parents and doctors of babies with birth defects to a nonprofit fully dedicated to children, health and human rights.
The main aim and objective of the Uday Foundation is to provide support services to the children afflicted with congenital defects, critical disorders, syndromes, and diseases that affect their health condition, education & growth.
Treatment of congenital defects can be a huge drain on family finances, even for the relatively well off. Through whatever limited funds we have, we try to disburse medical aid to as many patients as possible.
Stories of Success:
Medical Assistance and Support to Children in Need
Source: Uday Foundation
No comments:
Post a Comment